TY - JOUR T1 - Parent experiences and preferences when dysmelia is identified during the prenatal and perinatal periods: a qualitative study into family nursing care for rare diseases JO - Journal of Family Nursing UR - https://eprints.whiterose.ac.uk/id/eprint/198919 PY - 2018/05/16 AU - Johnson J AU - Johnson O AU - Heyhoe J AU - Fielder C AU - Dunning A ED - DO - DOI: 10.1177/1074840718772808 PB - SAGE Publications VL - 24 IS - 2 SP - 271 EP - 293 Y2 - 2025/12/16 ER -